Adherence, quality of life, self-efficacy and family variables of disability
Please read the entire page carefully.
Welcome and thank you for considering participation in this study of living with a disability and the ways you accommodate your disability into your life. Please read the directions and informed consent statement, and, if you decide to participate, you can then proceed to completing the questionnaire.
Directions and Informed Consent
Participation will require 15- 30 minutes of your time in reading and completing a set of questionnaires. If you decide to participate, you will be asked some questions about issues surrounding your disability/chronic illness and how you deal with daily life situations.
There will be no direct benefit to you through participation in the study other then the personal insights that may be gained through reflecting on the questionnaire items and your responses. However, it is hoped that the results of the study may be beneficial to organizations and individuals with an interest in improving the aspects the quality of life of individuals with disabilities. The social and psychological risks of participating in this study are expected to be minimal, because we have taken steps to protect your privacy. If you have further questions or concerns, you should contact the investigator at the address below.
The information that you provide will be used only for research purposes. Your participation is entirely voluntary, and your decision about whether or not to participate, or whether you decide to stop after you begin, will have no negative effects on you in any way. Although no information can be guaranteed to be entirely safe, we have attempted to keep all information confidential by having you provide responses with minimal information, in which there will be no attempt to identify you. Further, no identifying information will be requested in the questionnaires. Thus, your identity and your responses will remain as anonymous and confidential as possible. If you decide to withdraw from this study before your survey is completed, there will be no record of your responses. Once you complete the survey, your responses will be sent to a database, with no information that would identify you. Therefore, if you complete the survey and transmit your responses, it will not be possible to withdraw, as we would not be able to distinguish your responses from those of other participants.
This information obtained in the study will be used by the primary researcher, and the data will be kept for seven years. No other party will have access to the data, and it will not be disseminated in any identifiable way to any other parties. Only group data will be included in reports, not individual data. This research has been approved by the Florida Atlantic University Institutional Review Board. Contact information for the Board is listed below.
Michael Frain: mfrain@fau.edu
Department of Counselor Education
Florida Atlantic University
777 Glades Road, 42, 271
Boca Raton, FL 33431
561-297-3626
For related problems or questions regarding your rights as a subject, the Office of Sponsored Research at Florida Atlantic University can be contacted at (561) 297-2310.
Please print this page for your own records
If you are 18 years or older have read and understand the above consent statements, and wish to participate
CLICK HERE TO COMPLETE THE QUESTIONNAIRE*
*By clicking this link, you, the participant, acknowledge that you are participating freely in this study, that you are at least 18 years of age, that you have read and agreed to the information presented on this pate, and that you understand that your answers are used for the purpose of research at Florida Atlantic University and will be kept confidential at all time.